How to Find a Disease Specialist

Many individuals want to know about healthcare professionals or researchers who have knowledge of their conditions. When a condition is rare, it can be difficult to find someone who has seen many cases. Although there is no list of experts in rare diseases, the guidelines below include several ways to identify healthcare professionals who have experience with a particular condition.
Media Type: Html
- SourceUrl: https://rarediseases.info.nih.gov/guides/pages/25/how-to-find-a-disease-specialist
- Syndication ID: 17462
- Language: English
- Source: National Center for Advancing Translational Sciences (NCATS)
- Date Syndication Captured: Monday, February 05, 2018 at 09:41 PM
- Date Syndication Updated: Thursday, May 05, 2022 at 12:49 AM
Tags
            
            
                General: 
                
                    genetics
                
                    clinical trials
                
                    healthcare providers
                
                    genetic counseling
                
                    healthcare professionals
                
                    researchers
                
                    rare diseases
                
                    Genetic Disease
                
                
            
        
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